遺傳診斷後續處置的倫理與心理社會議題-以產前遺傳診斷為例 (III)

In this third year study, there are two parts: in the first part, we want to explore the effect of genetic counseling on helping pregnant women with abnormal fetus(es) (including chromosomal anomalies) to understand the informed consent and on alleviating anxiety of them. The subjects were 50 pregnant women who opted artificial abortion in delivery room in a medical center. Genetic counseling was provided to 28 women (experimental group) before answering the questionnaire whereas to 22 women control group after answering the questionnaire. More subjects in experimental group thought the inform consent providing complete information. The anxiety of experimental group is lower than the control group, but it is not statistically different in the statistics. In the second part, we interviewed 400 postpartum women to inquiry their experience of taking the maternal serum screening, ultrasound, amniocentesis. We also used “Knowledge of Prenatal Screening and Diagnostic Tests” and “Women’s Attitudes Towards the Pregnancy and the Fetus” to understand the willingness of participating the prenatal screening and willingness-to-pay for the examination. In conclusion, genetic counseling can help the pregnant women to have more information for the abnormal prenatal diagnosis. Most of the postpartum women were satisfied to the informed consent given at outpatient clinic and would like to undergo prenatal serum screening as well as sonographic examination in their next pregnancy