The influence of informing on life quality of stoma patients

Cilj: Ispitati kako informiranost pacijenata utječe na kvalitetu života sa stomom. Specifični ciljevi su ispitati postoji li razlika s obzirom na spol i dob te postoji li razlika s obzirom na članstvo u udrugama. Kroz sve obuhvatni upitnik otkriti s kakvim simptomima i problemima su se susretali ispitanici u funkcionalnim skalama. Ispitanici i metode: Ispitanicu su bili pacijenati sa ugrađenom stomom na području Slavonije koji su članovi Saveza invalidskih društava ILCO Hrvatske i oni koji nisu članovi udruga. Ispitivanje je provedeno anonimnim i dobrovoljnim načinom. Metoda istraživanja je bio anonimni upitnik koji je izrađen u suradnji s mentorom i upitnikom Europske organizacije za istraživanje i liječenje karcinoma. Rezultati: Sudjelovalo je ukupno 112 ispitanika, od kojih je 58 muškaraca i 54 žena. Najviše pacijenata se složilo s tvrdnjom da su im informacije bile potrebne prije i nakon operacije, da su jako zadovoljni informacijama koje su dobili u klubu ili udruzi pacijenata sa stomom, te da bi pacijentu s njihovom dijagnozom preporučili operaciju i stomu. Nimalo nisu zadovoljni informacijama koje su dobili od laika. Svoje zdravstveno stanje i ukupnu kvalitetu života tijekom proteklog tjedna ocjenjuju uglavnom dobro, tek manji dio je nezadovoljan. Zaključak: Prema spolu i pripadnosti nekom klubu ili grupi potpore nema značajne razlike u zadovoljstvu informiranosti, dok ispitanici u dobi od 41 do 50 godina su značajnije zadovoljniji informacijama. Najizraženije probleme ispitanici su imali u tjelesnom funkcioniranju i emocionalnom funkcioniranju. Najčešći simptomi su: poteškoće sa spavanjem i financijske poteškoće uzrokovane fizičkim stanjem ili terapijom.Objective: to test the impact that education and awareness of patients has on the quality of life with a stoma. Specific goals are to find out if there is a difference reagarding sex and age and if there is a difference between patients who are part of associations and those who are not. Using an all-encompassing questionnaire, the aim is also to find out symptoms and problems the participants are faced with in functional scales. Participants and methods: Examinees were patients with a stoma in the Slavonia area which are members of The Disabled People’s Association of Croatia (Savez invalidskih društava ILCO Hrvatske) and those who are not part of any association. The survey was done anonymously and voluntarily. The method of research was an anonymous questionnaire which was made in collaboration with my mentor and in accordance with The European Organisation for Research and Treatment of Cancer. Results: In total, 112 examinees took part, of which 58 are male and 54 female. Most of the patients agreed upon the fact that they needed the information before and after the operation, that they are very satisfied with the information they got in the club or form the association of patients with stoma, and that they would recommend the operation and stoma to patients with the same diagnosis they had. They are completely unsatisfied with information they received from the layman. They rate their health and general quality of life during the past week as generally good; just a small part is not satisfied. Conclusion: Regarding the sex and club or support group membership there is no significant difference in satisfaction concerning the given information, while examinees between the age of 41 and 50 are much more satisfied with the information they got. The biggest problem the examinees had was their physical and emotional functioning. The most common symptoms are: sleep disorders and financial troubles caused by their physical condition and therapy