Children with Development Difficulties and their Families

U radu se prezentiraju obitelji djece s teškoćama u razvoju, njihovom ţivotnom ciklusu, emocionalnim stanjima roditelja djece s teškoćama u razvoju, preprekama na koje najĉešće nailaze, roditeljskom stresu i o vrstama socijalne podrške. Provedeno je istraţivanje u kojem je problem rada zadovoljstvo roditelja naĉinom i koliĉinom društvene podrške. Cilj rada bio je utvrditi stavove 100 roditelja djece s teškoćama u razvoju iz Splitsko-dalmatinske ţupanije o njihovoj prihvaćenosti u društvu. Istraţivanje je provedeno u dvije ustanove centara za odgoj i obrazovanje i djeĉjem vrtiću za djecu s teškoćama u razvoju u Splitu. Za istraţivanje se koristio upitnik Obiteljske kvalitete ţivota. Istraţivanje je pokazalo kako roditelji imaju potrebu za društvenom podrškom i većinom se slaţu da okolina u kojoj ţive prihvaća njihovo dijete s teškoćama u razvoju. Za roditelje je znaĉajna podrška šire socijalne zajednice i interakcija sa zajednicom te se pokazalo da im okolina ne stvara dodatni stres. Roditelji su zadovoljni pruţenim zdravstvenim uslugama te se u većini slaţu da nedostaje struĉnjaka specijaliziranih za edukacijsko rehabilitacijski rad s djecom s teškoćama u razvoju. Većina roditelja ima djeĉji doplatak te njihovo dijete ima osobnu invalidninu. Roditelji najviše koriste usluge rane intervenije te integraciju. Istraţivanje je pokazalo da roditelje od svega najviše zabrinjava djetetova samostalnost.This thesis includes theoretical includes of who are the children with disabilities. Furthermore, it speaks about families who have children with disabilities, their life through stages, emotional stages, and problems in their life, their stress, definition and types of social support. Research aim was to establish how 100 parents of children with disabilities from Split-Dalmatia County see their social acceptance. Research is made in two institutions of education and learning and in kindergarten for children with disabilities in Split. The Family quality of life scale has been used for research. Research has shown that parents need social support and they agree that social community in place where they live accept their child with disabilities. It is significantly for them to have support and interaction with social community and that community does not give them additional stress. Parents are satisfied with health service and majority of them think that there are small number of people who are specialized to work with children with disabilities. Parents have children allowance and their children have personal disability. Parents have used early intervention service and integration. The fact that parent’s worries the most is how will conceive independence of their child