Dialogue on Ideal End-of-Life Care for Those With Dementia

Purpose: To identify both meanings and perceptions of delivery of end-of-life (EoL) care for the person experiencing dementia. Design/Methods: As part of a larger cross-sectional mixed methods study examining quality of life in dementia, perspectives of EoL care were sought from 136 seniors using open-ended questions administered at interview. Results: Seniors living in various settings identified obligatory requisites of care as time when the finality of death needed to be accepted, comfort was prioritized, family presence was valued, appearance remained important, and solitude or time “to be with God” was stressed. Skilled nursing care, honesty, and engaged family were also necessary. Implications: Understanding EoL preferences of those with dementia is critical for advocacy and service delivery