Advances in next-generation DNA sequencing (NGS) now make it possible, and affordable, to sequence the entire genome of an individual. Routine clinical application is on the horizon. There is a consensus that some subsets of genetic information should be disclosed to patients, but disclosure to their relatives is less consensual. This issue becomes especially salient after a patient's death, when permission can no longer be sought. There has however been little debate on postmortem disclosure. We identify and explain the arguments in favor of and against disclosure of genetic information to the relatives of a deceased patient. We conclude that there are valid reasons to communicate some subsets of genetic information to family members after...
Purpose: Genetic information has health implications for patients and their biological relatives. De...
Objective This study explored family communication about undertaking genomic sequencing, and intenti...
The use of genetic and genomic testing is becoming more widespread in health care and more inherited...
Advances in next-generation DNA sequencing (NGS) now make it possible, and affordable, to sequence t...
When a gene mutation is identified in a research study following the death of the study participant,...
OBJECTIVES: This study explores communication within families of clinically significant genetics res...
Purpose: This study was designed to obtain current practices and opinions of genetic counselors sur...
There has been much discussion about what, if any, legal and moral duties professionals have to disc...
Role of next of kin in accessing health records of deceased relatives Anneke M Lucassen, Michael Par...
Objectives: This study explores communication within families of clinically significant genetics res...
The majority of biobank policies and consent forms do not address post-mortem use of data for medica...
The majority of biobank policies and consent forms do not address post-mortem use of data for medica...
Communicating results from genomic sequencing to family members can play an essential role allowing ...
In the last decade, an overwhelming number of genetic aberrations have been discovered and linked to...
Advances in genetic and genomic research mean that the identification of a genetic condition or a ge...
Purpose: Genetic information has health implications for patients and their biological relatives. De...
Objective This study explored family communication about undertaking genomic sequencing, and intenti...
The use of genetic and genomic testing is becoming more widespread in health care and more inherited...
Advances in next-generation DNA sequencing (NGS) now make it possible, and affordable, to sequence t...
When a gene mutation is identified in a research study following the death of the study participant,...
OBJECTIVES: This study explores communication within families of clinically significant genetics res...
Purpose: This study was designed to obtain current practices and opinions of genetic counselors sur...
There has been much discussion about what, if any, legal and moral duties professionals have to disc...
Role of next of kin in accessing health records of deceased relatives Anneke M Lucassen, Michael Par...
Objectives: This study explores communication within families of clinically significant genetics res...
The majority of biobank policies and consent forms do not address post-mortem use of data for medica...
The majority of biobank policies and consent forms do not address post-mortem use of data for medica...
Communicating results from genomic sequencing to family members can play an essential role allowing ...
In the last decade, an overwhelming number of genetic aberrations have been discovered and linked to...
Advances in genetic and genomic research mean that the identification of a genetic condition or a ge...
Purpose: Genetic information has health implications for patients and their biological relatives. De...
Objective This study explored family communication about undertaking genomic sequencing, and intenti...
The use of genetic and genomic testing is becoming more widespread in health care and more inherited...