Quality and Readability Assessment of Websites Related to Recurrent Respiratory Papillomatosis

Objective: Recurrent respiratory papillomatosis (RRP) is a rare disease for which a limited number of information sources for patients exist. The role of the Internet in the patient - physician relationship is increasing. More and more patients search for online health information, which should be of good quality and easy readable. The study aim was to investigate the quality and readability of English online health information about RRP. Study Design: Quality and readability assessment of online information. Methods: Relevant information was collected using three different search engines and seven different search terms. Quality was assessed with the DISCERN instrument. The Flesch Reading Ease Score (FRES) and average grade level (AGL) were determined to measure readability of the English websites. Results: Fifty-one English websites were included. The mean DISCERN score of the websites is 28.1 +/- 9.7 (poor quality); the mean FRES is 41.3 +/- 14.9 (difficult to read); and the mean AGL is 12.6 +/- 2.3. Conclusion: The quality and readability of English websites about RRP is alarmingly poor