This report presents an outline of the main research activities, short fieldwork and key outputs that were undertaken and produced respectively during the research placement (as 2014 visiting scholar) at the research center science and justice, University of California, Santa Cruz. The research conducted during the period of the grant (January - April 2014) focuses on understandings of personal data ownership and sharing amongst individuals and digital health start-up companies who self-track in the San Francisco Bay area, and draws on wider research on wearable devices for monitoring health and well-being. The research placement was funded by the Research Council UK digital economy theme, under the NEMODE (New Economic Models in the Digita...
Purpose Biomedical data governance strategies should ensure that data are collected, stored, and use...
This study identifies and explores evolving concepts of trust and privacy in the context of user-gen...
Introduction: This article is part of a Focus Theme of Methods of Information in Medicine on Health ...
Objectives: This paper explores the range of self-tracking devices and social media platforms used b...
Thanks to recent advances in the field of ubiquitous computing, an increasing number of users now re...
Research on large shared medical datasets and data-driven research are gaining fast momentum and pro...
Objective: Understand barriers to the use of personal health data (PHD) in research from the perspec...
Objectives: This paper explores the range of self-tracking devices and social media platforms used b...
This article explores some of the potential pitfalls associated with collection of detailed individu...
The Bio-Contribute challenge is an ambitious initiative aimed at revolutionizing the way facts are...
Workshops data, consisting of notes made by the University of Bristol researcher of workshops held i...
New computational and sensing innovations, coupled with increasingly affordable access to consumer h...
To identify vulnerabilities in self-regulatory practices, we focused on what we expected to be five ...
Purpose: Biomedical data governance strategies should ensure that data are collected, stored, and us...
Purpose: Biomedical data governance strategies should ensure that data are collected, stored, and us...
Purpose Biomedical data governance strategies should ensure that data are collected, stored, and use...
This study identifies and explores evolving concepts of trust and privacy in the context of user-gen...
Introduction: This article is part of a Focus Theme of Methods of Information in Medicine on Health ...
Objectives: This paper explores the range of self-tracking devices and social media platforms used b...
Thanks to recent advances in the field of ubiquitous computing, an increasing number of users now re...
Research on large shared medical datasets and data-driven research are gaining fast momentum and pro...
Objective: Understand barriers to the use of personal health data (PHD) in research from the perspec...
Objectives: This paper explores the range of self-tracking devices and social media platforms used b...
This article explores some of the potential pitfalls associated with collection of detailed individu...
The Bio-Contribute challenge is an ambitious initiative aimed at revolutionizing the way facts are...
Workshops data, consisting of notes made by the University of Bristol researcher of workshops held i...
New computational and sensing innovations, coupled with increasingly affordable access to consumer h...
To identify vulnerabilities in self-regulatory practices, we focused on what we expected to be five ...
Purpose: Biomedical data governance strategies should ensure that data are collected, stored, and us...
Purpose: Biomedical data governance strategies should ensure that data are collected, stored, and us...
Purpose Biomedical data governance strategies should ensure that data are collected, stored, and use...
This study identifies and explores evolving concepts of trust and privacy in the context of user-gen...
Introduction: This article is part of a Focus Theme of Methods of Information in Medicine on Health ...