Sickle cell data collection program report : data to action

The Sickle Cell Data Collection (SCDC) program gathers health data from multiple sources to deter- mine how many people live with sickle cell disease (SCD) in the United States and to learn about their use of healthcare services and health outcomes over time The SCDC program shares this information with audiences who can drive improvements in SCD health care, treatment, and policyThe primary goal of the SCDC program is to improve quality of life, life expectancy, and health among those living with SCD Accomplishing this goal requires a joint effort across a variety of SCD stakeholders including providers, healthcare administrators, pharmaceutical companies, SCD community organizations, policymakers, public health organizations, and most importantly, patients and their advocates.CS295198-Asickle-cell-data-to-action-h.pdf201