The impact on parents of caring for people with intellectual disabilities and autism spectrum disorder

This thesis comprises of three papers. The first is a literature review that focuses on the positive impact on parents caring for a child with an intellectual disability. Fourteen themes pertaining to positive impact are derived from papers and the two main measures used to assess positive impact are The Kansas Inventory of Positive Perceptions and The Positive and Negative Assessment Scale. The relationship between positive impact of caring and parental wellbeing is explored. Wellbeing is raised when there are positive perception of caring. The empirical paper explores the relationship between parental stress, challenging behaviour and characteristics of autism spectrum disorder. When people with autism spectrum disorder show challenging behaviours, characteristics of adaptive functioning, pleasure and interest, and reciprocal social interaction are lower and impulsivity is heightened in comparison to people showing no challenging behaviours. Age also differs between groups. Negative correlations between adaptive functioning, pleasure and interest and social reciprocal interaction and parental stress are found. There is a positive correlation between impulsivity and parental stress. Impulsivity is the only predictor of stress. The third paper is a public domain briefing document, which gives an overview of the literature review and empirical paper for dissemination to the general population