Psychosocial distress in patients with psoriasis

Izhodišča, namen: Luskavica vpliva na vse vidike kakovosti življenja, vključno s fizičnimi, psihološkimi, socialnimi in poklicnimi elementi. Gre za več faktorsko vnetno stanje z bremenom bolezni, ki se kaže s fizičnimi simptomi, ki jih imajo pacienti. Namen raziskave je raziskati, s katerimi psihosocialnimi stiskami se sooča pacient, ki ima luskavico in prikazati, kakšen je odnos družbe do sprejemanja pacienta z luskavico. Raziskovalne metode: Uporabljena je bila kvalitativna metoda raziskovanja, v sklopu katere je bil izveden intervju odprtega tipa, zastavljen po konceptualnem modelu Virginije Henderson. V raziskavi je sodelovala ena pacientka z boleznijo luskavica. Rezultati: Ugotovljeno je bilo, da so najpogostejše stiske/problemi, s katerimi se spopada pacient s kožno boleznijo luskavica v času akutnosti bolezni na psihološkem in socialnem področju anksioznost, samomorilne misli, depresija, socialna izolacija, jeza, stres. Ugotovili smo, da družba ne sprejema in ni naklonjena pacientu s kožno boleznijo, ga socialno stigmatizira in zavrača. Diskusija in zaključek: Luskavica prizadene ljudi vseh starostnih skupin in ima velik vpliv na kakovost življenja. Stiske, s katerimi se srečujejo pacienti, so dolgotrajne in zahtevajo svojevrstno obravnavo, zato je pomembno, da družba in okolica sprejmeta pacienta obolelega za luskavico kot celoto, ne kot osebo z omejitvami.Introduction, purpose: Psoriasis influences every perspective of quality of life, including physical, psychological, social and occupational elements. It is an inflammatory condition with the burden of illness, which shows by physical symptoms that patients have. The purpose of the research was to find out by which of the psychosocial distress the patient is confronted with and present the relationship of society towards accepting patients with psoriasis. Research methods: In the research was used qualitative method of research, within which was conducted an interview of the open type, created by example of conceptual model, made by Virginia Henderson. In the research was participated one patient with psoriasis which gender was female. Results: The research found out, that the most common distress/problems, which the psoriasis patients has to deal with by time of the acuteness of the disease are mostly psychological and social aspect of their life, they mostly struggle with anxiety, suicidal thoughts, depression, social isolation, anger and stress. It has been found out, that the society is mostly not accepting patients with skin diseases well, it socially stigmatizes and often refuses them. Discussion and conclusion: Psoriasis affects people of all age groups and has a big impact on quality of life. The distress that patient face are long term and are in need of their own treatment, because of that it is crucial that society accepts the patient as equal and not as someone with limitations or incapabilities