Experiences of people living with a colostomy or ileostomy

Background: Stoma surgeries are increasing in Sweden each year. Colorectal cancer, inflammatory bowel diseases, and trauma are some conditions that might lead to an ostomy. Having an ostomy could bring changes to the body and the person’s body image, leaving the person feeling imprisoned in his or her own body. Aim: The aim was to illuminate people’s experiences of getting and living with an ostomy. Method: A literature-based study was conducted in which nine qualitative articles were studied and analysed. Three new themes and eight sub-themes arose from the analysed articles. Results: The main themes of the study were: ”Changes in close relationships and sexual life”, where it was found to be difficult to start a new sexual relationship after the surgery and that the stoma also had effects on family relations and friendships. ”Limitations in social and physical activities”, where the result showed that persons with ostomies were constantly worried about leakage and odour, and had difficulties performing physical activities such as work or exercise. ”A new self”, people who had had stoma surgery were found to experience difficulties in adapting to their new body and accepting the stoma as part of their body. Common for all themes was the importance of support from family and friends. Conclusion: Persons who have had colostomy or ileostomy surgery all have different needs and challenges. It is important to see to their individual needs