This Northern Ireland Rare Diseases Implementation Plan sets out the commitment of the Department, the Health and Social Care sector, the voluntary sector, and education and research stakeholders to address the needs of people living with the impact of a rare disease regardless of their age, where they live and whatever their circumstances.Â
Introduction: Rare diseases affect more than 5% of the population in Northern Ireland (NI), with man...
The steering group for rare diseases has prepared a proposal for a National Plan for Rare Diseases 2...
SIGLEAvailable from British Library Document Supply Centre-DSC:98/22128 / BLDSC - British Library Do...
National Rare Disease Plan for Ireland 2014-2018 This is a generic policy framework for rare disease...
This report presents findings from the National Consultation on Rare Disease overseen by the Institu...
Background: Rare diseases (RDs) are often complex, serious, chronic and multi-systemic conditions, a...
Abstract Background Calls have been made for governments to adopt a cohesive approach to rare diseas...
According to the WHO a disease or disorder is defined as rare in Europe when it affects fewer than ...
Abstract Rare diseases collectively exert a global public health burden in the severity of their man...
Rare diseases are characterised by their relatively low prevalence (less than 1 in 2,000 people in t...
International audienceAround 4% of the global population suffers from a rare disease. Apart from the...
Public health relies on technologies to produce and analyse data, as well as effectively develop and...
Having codes for each and every rare disease (RD) would help European and national health authoritie...
The unexpected outbreak of the COVID-19 disease had significant and enormous repercussions on the he...
Introduction: Rare diseases affect more than 5% of the population in Northern Ireland (NI), with man...
The steering group for rare diseases has prepared a proposal for a National Plan for Rare Diseases 2...
SIGLEAvailable from British Library Document Supply Centre-DSC:98/22128 / BLDSC - British Library Do...
National Rare Disease Plan for Ireland 2014-2018 This is a generic policy framework for rare disease...
This report presents findings from the National Consultation on Rare Disease overseen by the Institu...
Background: Rare diseases (RDs) are often complex, serious, chronic and multi-systemic conditions, a...
Abstract Background Calls have been made for governments to adopt a cohesive approach to rare diseas...
According to the WHO a disease or disorder is defined as rare in Europe when it affects fewer than ...
Abstract Rare diseases collectively exert a global public health burden in the severity of their man...
Rare diseases are characterised by their relatively low prevalence (less than 1 in 2,000 people in t...
International audienceAround 4% of the global population suffers from a rare disease. Apart from the...
Public health relies on technologies to produce and analyse data, as well as effectively develop and...
Having codes for each and every rare disease (RD) would help European and national health authoritie...
The unexpected outbreak of the COVID-19 disease had significant and enormous repercussions on the he...
Introduction: Rare diseases affect more than 5% of the population in Northern Ireland (NI), with man...
The steering group for rare diseases has prepared a proposal for a National Plan for Rare Diseases 2...
SIGLEAvailable from British Library Document Supply Centre-DSC:98/22128 / BLDSC - British Library Do...