Use of patient-reported outcome and experience measures in patient care and policy : Short Report

52 p.ill.,FOREWORD 1 -- SYNTHESIS 2 -- 1. INTRODUCTION 4 -- 1.1. KEY CONCEPTS 5 -- 1.1.1. Patient-reported outcome measures 5 -- 1.1.2. Patient-reported experience measures 5 -- 1.2. WHY MEASURING PATIENT-REPORTED OUTCOMES AND EXPERIENCES? 6 -- 2. EVIDENCE ABOUT THE IMPACT OF PROMS AND PREMS 9 -- 3. INTERNATIONAL INITIATIVES 10 -- 4. NATIONAL INITIATIVES IN FRANCE, THE NETHERLANDS AND THE UK 12 -- 4.1. DIFFERENT SYSTEMS AND STAGES OF IMPLEMENTATION 12 -- 4.2. COMPARABLE AIMS 14 -- 4.3. DIFFERENT IMPLEMENTATION STRATEGIES 14 -- 4.4. VARIOUS INSTRUMENTS AND SURVEY METHODS 15 -- 4.5. SCARCE EVIDENCE ON THE USE AND EFFECTS OF PROMS/PREMS 15 -- 5. PROMS AND PREMS IN BELGIUM 16 -- 5.1. GENERAL OBSERVATIONS 16 -- 5.2. PURPOSE OF PROM AND PREM DATA COLLECTION 16 -- 5.3. STAKEHOLDER INVOLVEMENT 21 -- 5.4. DIGITALIZATION OF DATA REGISTRATION AND CLINICAL REGISTRIES 21 -- 5.5. INTEGRATION OF DATA IN ELECTRONIC PATIENT RECORDS AND REGISTRIES 22 -- 5.6. MEASUREMENT FREQUENCY 22 -- 5.7. POPULATION 22 -- 5.8. INSTRUMENTS 22 -- 5.9. OPERATIONAL ASPECTS 23 -- 5.10. DATA ANALYSIS AND FEEDBACK 24 -- 6. BARRIERS AND FACILITATORS FOR PROMS / PREMS INITIATIVES 25 -- 7. DISCUSSION 28 -- 8. CONCLUSION 30 -- 9. EXPLANATION OF THE RECOMMENDATIONS 31 -- 9.1. GENERAL REQUIREMENTS INDEPENDENT OF THE AIMS OR DECISION LEVEL 31 -- 9.2. GOVERNMENTAL INITIATIVES 34 -- 9.2.1. Governments aiming at using PROMs and PREMs for pay-for-performance purposes 35 -- 9.2.2. Governments aiming at benchmarking healthcare institutions and stimulating in this way quality improvement initiatives at institutional level 36 -- 9.2.3. Governments aiming at public reporting of institutional quality of care 36 -- 9.3. INSTITUTIONS AIMING AT QUALITY AND OUTCOME IMPROVEMENT 36 -- 9.4. CLINICIANS AIMING AT IMPROVEMENT OF CLINICAL PRACTICE (PATIENT-PHYSICIAN COMMUNICATION, SHARED DECISION MAKING, FOLLOW-UP) 37 -- 9.5. POSSIBLE ACTION POINTS AT DIFFERENT DECISION LEVELS 38 -- RECOMMENDATIONS 42 -- REFERENCES 4