Additional file 1: Table S1. of Patientâs experiences with the care for juvenile idiopathic arthritis across Europe

E. van Dijkhuizen (4841508)
Tsipi Egert (4841505)
Yona Egert (4841493)
Wendy Costello (4841502)
Casper Schoemaker (4841499)
Marlous Fernhout (4841496)
Mirjam Kepic (4841487)
Alberto Martini (8758)
Silvia Scala (4841511)
Ingrid Rotstein-Grein (4841490)
Sebastiaan Vastert (4841514)
Nico Wulffraat (28328)

Publication date

February 2018

DOI

10.6084/m9.figshare.5872866.v1

Abstract

Number of questionnaires per country and division into regions. Table S2. SHARE PARENT SURVEY: Patient Personal Information and Diagnosis. (DOCX 24 kb

Extracted data

We use cookies to provide a better user experience.

Data Protection

Additional file 1: Table S1. of Patientâs experiences with the care for juvenile idiopathic arthritis across Europe

E. van Dijkhuizen (4841508)
Tsipi Egert (4841505)
Yona Egert (4841493)
Wendy Costello (4841502)
Casper Schoemaker (4841499)
Marlous Fernhout (4841496)
Mirjam Kepic (4841487)
Alberto Martini (8758)
Silvia Scala (4841511)
Ingrid Rotstein-Grein (4841490)
Sebastiaan Vastert (4841514)
Nico Wulffraat (28328)

Open link

Publication date

February 2018

DOI

10.6084/m9.figshare.5872866.v1

Abstract

Number of questionnaires per country and division into regions. Table S2. SHARE PARENT SURVEY: Patient Personal Information and Diagnosis. (DOCX 24 kb

Extracted data

Claas Hinze (4787091)
Dirk Holzinger (255078)
Elke Lainka (4787085)
Johannes-Peter Haas (2868563)
Fabian Speth (3834181)
Tilmann Kallinich (3404807)
Nikolaus Rieber (205867)
Markus Hufnagel (81916)
Annette Jansson (4787079)
Christian Hedrich (4787094)
Hanna Winowski (4787097)
Thomas Berger (72614)
Ivan Foeldvari (4578778)
Gerd Ganser (4578772)
Anton Hospach (3415982)
Hans-Iko Huppertz (344746)
Kirsten Mönkemöller (785826)
Ulrich Neudorf (4787082)
Elisabeth Weißbarth-Riedel (4787088)
Helmut Wittkowski (4787076)
Gerd Horneff (3415988)
Dirk Foell (249589)

January 2018

Expert opinion on individual management steps in various case scenarios reflecting the spectrum of s...

Additional file 2: of Similar alteration for mental and physical aspects in health-related quality of life over 5 to 8 years in 1347 patients with early arthritis and early inflammatory back pain

Déborah Puyraimond-Zemmour (6381269)
Benjamin Granger (5586698)
Anna Molto (6381272)
Cécile Gaujoux-Viala (6381275)
Francis Guillemin (91597)
Adeline Ruyssen-Witrand (408283)
Maxime Dougados (12589)
Bruno Fautrel (143749)
Laure Gossec (4058521)

February 2019

Table S2. Characteristics of patients in each trajectory of 566 patients in early arthritis and 459 ...

Additional file 1: of Comparative study of Interleukin-18 (IL-18) serum levels in adult onset Stillâs disease (AOSD) and systemic onset juvenile idiopathic arthritis (sJIA) and its use as a biomarker for diagnosis and evaluation of disease activity

Holger Kudela (6409178)
Susanne Drynda (2099)
Anke Lux (3161460)
Gerd Horneff (3415988)
Joern Kekow (51973)

February 2019

Table S1. List of main diganoses in adult control group. Table S2. List of diseases in childrenâs ...

Additional file 1: Table S1. of The lived experience of juvenile idiopathic arthritis in young people receiving etanercept

P Livermore (3526688)
D Eleftheriou (3526691)
LR Wedderburn (3526694)

April 2016

Demographics of all patients captured at time of interview to provide the reader with more clarity o...

Additional file 2: Table S1. of The difference of disease perception by juvenile idiopathic arthritis patients and their parents: analysis of the JAMAR questionnaire

Federica Vanoni (3560678)
Joan-Carles Suris (3560684)
Annette von Scheven-Gête (3560690)
Béatrice Fonjallaz (3560681)
Michaël Hofer (3560687)

January 2016

Groups demographic and clinical variables. Legend: Values are expressed as means. (PDF 24 kb

Additional file 1: of Participation in a single-blinded pediatric therapeutic strategy study for juvenile idiopathic arthritis: are parents and patient-participants in equipoise?

Petra Hissink Muller (6109436)
Bahar Yildiz (6109439)
Cornelia Allaart (3398666)
Danielle Brinkman (6109442)
Marion Rossum (6109445)
Lisette Suijlekom-Smit (6109448)
J. Berg (6109451)
Rebecca Cate (6109454)
Martine Vries (6109457)

December 2018

The three treatment strategies in the BeSt for Kids study. Table representing the initial treatment ...

Additional file 2: Table S2. of Education and employment in patients with juvenile idiopathic arthritis â a standardized comparison to the German general population

Jenny Schlichtiger (2868557)
Johannes-Peter Haas (2868563)
Swaantje Barth (2868554)
Betty Bisdorff (2868560)
Lisa Hager (4041590)
Hartmut Michels (2868548)
Boris HĂźgle (3580769)
Katja Radon (487886)

May 2017

Crude and age and sex-standardized comparison of the employment status of the SEPIA study population...

Additional file 3: Table S3. of Education and employment in patients with juvenile idiopathic arthritis â a standardized comparison to the German general population

Jenny Schlichtiger (2868557)
Johannes-Peter Haas (2868563)
Swaantje Barth (2868554)
Betty Bisdorff (2868560)
Lisa Hager (4041590)
Hartmut Michels (2868548)
Boris HĂźgle (3580769)
Katja Radon (487886)

May 2017

Crude and age- and sex-standardized comparison of the unemployment rate of the SEPIA study populatio...

Additional file 1: Figure S1. of The difference of disease perception by juvenile idiopathic arthritis patients and their parents: analysis of the JAMAR questionnaire

Federica Vanoni (3560678)
Joan-Carles Suris (3560684)
Annette von Scheven-Gête (3560690)
Béatrice Fonjallaz (3560681)
Michaël Hofer (3560687)

January 2016

a) age at visit, b) age at disease onset, c) disease duration and d) n° of actives joints in the six...

Additional file 1: Table S1. of Protocols on classification, monitoring and therapy in children’s rheumatology (PRO-KIND): results of the working group Polyarticular juvenile idiopathic arthritis

Gerd Horneff (3415988)
Ariane Klein (3415976)
Gerd Ganser (4578772)
Michaela Sailer-Höck (4578775)
Annette Günther (4578769)
Ivan Foeldvari (4578778)
Frank Weller-Heinemann (3415991)

November 2017

17 Statements that were approved by the web-based survey with >80% approval. Table S2. Agreement of ...

Additional file 3: of Participation in a single-blinded pediatric therapeutic strategy study for juvenile idiopathic arthritis: are parents and patient-participants in equipoise?

Petra Hissink Muller (6109436)
Bahar Yildiz (6109439)
Cornelia Allaart (3398666)
Danielle Brinkman (6109442)
Marion Rossum (6109445)
Lisette Suijlekom-Smit (6109448)
J. Berg (6109451)
Rebecca Cate (6109454)
Martine Vries (6109457)

December 2018

Questionnaire during enrolment in the BeSt for Kids study (Translated from Dutch). Questionnaire pre...

Additional file 1: of Predicting unfavorable long-term outcome in juvenile idiopathic arthritis: results from the Nordic cohort study

Veronika Rypdal (5173886)
Ellen Arnstad (5173877)
Kristiina Aalto (606900)
Lillemor Berntson (5173892)
Maria Ekelund (5173880)
Anders Fasth (311582)
Mia Glerup (5173901)
Troels Herlin (4956082)
Susan Nielsen (5173895)
Suvi Peltoniemi (5173874)
Marek Zak (3845176)
Marite Rygg (5173883)
Martin Rypdal (5173889)
Ellen Nordal (5173898)

May 2018

Table S1. Characteristics of the 423 children in the Nordic juvenile idiopathic arthritis cohort at ...

Additional file 4: Table S3. of The difference of disease perception by juvenile idiopathic arthritis patients and their parents: analysis of the JAMAR questionnaire

Federica Vanoni (3560678)
Joan-Carles Suris (3560684)
Annette von Scheven-Gête (3560690)
Béatrice Fonjallaz (3560681)
Michaël Hofer (3560687)

January 2016

Tuckey post-hoc analysis between groups for JADAS. Legend: statistically significant differences bet...

Additional file 4: of Participation in a single-blinded pediatric therapeutic strategy study for juvenile idiopathic arthritis: are parents and patient-participants in equipoise?

Petra Hissink Muller (6109436)
Bahar Yildiz (6109439)
Cornelia Allaart (3398666)
Danielle Brinkman (6109442)
Marion Rossum (6109445)
Lisette Suijlekom-Smit (6109448)
J. Berg (6109451)
Rebecca Cate (6109454)
Martine Vries (6109457)

December 2018

Questionnaire Informed Consent Evaluation BeSt for Kids (Phase 2). This questionnaire was used durin...

Additional file 5: of Participation in a single-blinded pediatric therapeutic strategy study for juvenile idiopathic arthritis: are parents and patient-participants in equipoise?

Petra Hissink Muller (6109436)
Bahar Yildiz (6109439)
Cornelia Allaart (3398666)
Danielle Brinkman (6109442)
Marion Rossum (6109445)
Lisette Suijlekom-Smit (6109448)
J. Berg (6109451)
Rebecca Cate (6109454)
Martine Vries (6109457)

December 2018

Table S2. Parental preferences at inclusion (phase 1) and during interview (phase 2), in relation to...

Additional file 5: Table S4. of Practice and consensus-based strategies in diagnosing and managing systemic juvenile idiopathic arthritis in Germany

Claas Hinze (4787091)
Dirk Holzinger (255078)
Elke Lainka (4787085)
Johannes-Peter Haas (2868563)
Fabian Speth (3834181)
Tilmann Kallinich (3404807)
Nikolaus Rieber (205867)
Markus Hufnagel (81916)
Annette Jansson (4787079)
Christian Hedrich (4787094)
Hanna Winowski (4787097)
Thomas Berger (72614)
Ivan Foeldvari (4578778)
Gerd Ganser (4578772)
Anton Hospach (3415982)
Hans-Iko Huppertz (344746)
Kirsten Mönkemöller (785826)
Ulrich Neudorf (4787082)
Elisabeth Weißbarth-Riedel (4787088)
Helmut Wittkowski (4787076)
Gerd Horneff (3415988)
Dirk Foell (249589)

January 2018

Expert opinion on individual management steps in various case scenarios reflecting the spectrum of s...

Additional file 2: of Similar alteration for mental and physical aspects in health-related quality of life over 5 to 8 years in 1347 patients with early arthritis and early inflammatory back pain

Déborah Puyraimond-Zemmour (6381269)
Benjamin Granger (5586698)
Anna Molto (6381272)
Cécile Gaujoux-Viala (6381275)
Francis Guillemin (91597)
Adeline Ruyssen-Witrand (408283)
Maxime Dougados (12589)
Bruno Fautrel (143749)
Laure Gossec (4058521)

February 2019

Table S2. Characteristics of patients in each trajectory of 566 patients in early arthritis and 459 ...

Holger Kudela (6409178)
Susanne Drynda (2099)
Anke Lux (3161460)
Gerd Horneff (3415988)
Joern Kekow (51973)

February 2019

Table S1. List of main diganoses in adult control group. Table S2. List of diseases in childrenâs ...

Additional file 2: Table S1. of The difference of disease perception by juvenile idiopathic arthritis patients and their parents: analysis of the JAMAR questionnaire

Federica Vanoni (3560678)
Joan-Carles Suris (3560684)
Annette von Scheven-Gête (3560690)
Béatrice Fonjallaz (3560681)
Michaël Hofer (3560687)

January 2016

Groups demographic and clinical variables. Legend: Values are expressed as means. (PDF 24 kb

Additional file 1: of Participation in a single-blinded pediatric therapeutic strategy study for juvenile idiopathic arthritis: are parents and patient-participants in equipoise?

Petra Hissink Muller (6109436)
Bahar Yildiz (6109439)
Cornelia Allaart (3398666)
Danielle Brinkman (6109442)
Marion Rossum (6109445)
Lisette Suijlekom-Smit (6109448)
J. Berg (6109451)
Rebecca Cate (6109454)
Martine Vries (6109457)

December 2018

The three treatment strategies in the BeSt for Kids study. Table representing the initial treatment ...

Additional file 2: Table S2. of Education and employment in patients with juvenile idiopathic arthritis â a standardized comparison to the German general population

Jenny Schlichtiger (2868557)
Johannes-Peter Haas (2868563)
Swaantje Barth (2868554)
Betty Bisdorff (2868560)
Lisa Hager (4041590)
Hartmut Michels (2868548)
Boris HĂźgle (3580769)
Katja Radon (487886)

May 2017

Crude and age and sex-standardized comparison of the employment status of the SEPIA study population...

Additional file 3: Table S3. of Education and employment in patients with juvenile idiopathic arthritis â a standardized comparison to the German general population

Jenny Schlichtiger (2868557)
Johannes-Peter Haas (2868563)
Swaantje Barth (2868554)
Betty Bisdorff (2868560)
Lisa Hager (4041590)
Hartmut Michels (2868548)
Boris HĂźgle (3580769)
Katja Radon (487886)

May 2017

Crude and age- and sex-standardized comparison of the unemployment rate of the SEPIA study populatio...

Additional file 1: Figure S1. of The difference of disease perception by juvenile idiopathic arthritis patients and their parents: analysis of the JAMAR questionnaire

Federica Vanoni (3560678)
Joan-Carles Suris (3560684)
Annette von Scheven-Gête (3560690)
Béatrice Fonjallaz (3560681)
Michaël Hofer (3560687)

January 2016

a) age at visit, b) age at disease onset, c) disease duration and d) n° of actives joints in the six...

Additional file 1: Table S1. of Protocols on classification, monitoring and therapy in children’s rheumatology (PRO-KIND): results of the working group Polyarticular juvenile idiopathic arthritis

Gerd Horneff (3415988)
Ariane Klein (3415976)
Gerd Ganser (4578772)
Michaela Sailer-Höck (4578775)
Annette Günther (4578769)
Ivan Foeldvari (4578778)
Frank Weller-Heinemann (3415991)

November 2017

17 Statements that were approved by the web-based survey with >80% approval. Table S2. Agreement of ...

Additional file 3: of Participation in a single-blinded pediatric therapeutic strategy study for juvenile idiopathic arthritis: are parents and patient-participants in equipoise?

Petra Hissink Muller (6109436)
Bahar Yildiz (6109439)
Cornelia Allaart (3398666)
Danielle Brinkman (6109442)
Marion Rossum (6109445)
Lisette Suijlekom-Smit (6109448)
J. Berg (6109451)
Rebecca Cate (6109454)
Martine Vries (6109457)

December 2018

Questionnaire during enrolment in the BeSt for Kids study (Translated from Dutch). Questionnaire pre...

Additional file 1: of Predicting unfavorable long-term outcome in juvenile idiopathic arthritis: results from the Nordic cohort study

Veronika Rypdal (5173886)
Ellen Arnstad (5173877)
Kristiina Aalto (606900)
Lillemor Berntson (5173892)
Maria Ekelund (5173880)
Anders Fasth (311582)
Mia Glerup (5173901)
Troels Herlin (4956082)
Susan Nielsen (5173895)
Suvi Peltoniemi (5173874)
Marek Zak (3845176)
Marite Rygg (5173883)
Martin Rypdal (5173889)
Ellen Nordal (5173898)

May 2018

Table S1. Characteristics of the 423 children in the Nordic juvenile idiopathic arthritis cohort at ...

Additional file 4: Table S3. of The difference of disease perception by juvenile idiopathic arthritis patients and their parents: analysis of the JAMAR questionnaire

Federica Vanoni (3560678)
Joan-Carles Suris (3560684)
Annette von Scheven-Gête (3560690)
Béatrice Fonjallaz (3560681)
Michaël Hofer (3560687)

January 2016

Tuckey post-hoc analysis between groups for JADAS. Legend: statistically significant differences bet...

Additional file 4: of Participation in a single-blinded pediatric therapeutic strategy study for juvenile idiopathic arthritis: are parents and patient-participants in equipoise?

Petra Hissink Muller (6109436)
Bahar Yildiz (6109439)
Cornelia Allaart (3398666)
Danielle Brinkman (6109442)
Marion Rossum (6109445)
Lisette Suijlekom-Smit (6109448)
J. Berg (6109451)
Rebecca Cate (6109454)
Martine Vries (6109457)

December 2018

Questionnaire Informed Consent Evaluation BeSt for Kids (Phase 2). This questionnaire was used durin...

Additional file 5: of Participation in a single-blinded pediatric therapeutic strategy study for juvenile idiopathic arthritis: are parents and patient-participants in equipoise?

Petra Hissink Muller (6109436)
Bahar Yildiz (6109439)
Cornelia Allaart (3398666)
Danielle Brinkman (6109442)
Marion Rossum (6109445)
Lisette Suijlekom-Smit (6109448)
J. Berg (6109451)
Rebecca Cate (6109454)
Martine Vries (6109457)

December 2018

Table S2. Parental preferences at inclusion (phase 1) and during interview (phase 2), in relation to...

Additional file 5: Table S4. of Practice and consensus-based strategies in diagnosing and managing systemic juvenile idiopathic arthritis in Germany

Claas Hinze (4787091)
Dirk Holzinger (255078)
Elke Lainka (4787085)
Johannes-Peter Haas (2868563)
Fabian Speth (3834181)
Tilmann Kallinich (3404807)
Nikolaus Rieber (205867)
Markus Hufnagel (81916)
Annette Jansson (4787079)
Christian Hedrich (4787094)
Hanna Winowski (4787097)
Thomas Berger (72614)
Ivan Foeldvari (4578778)
Gerd Ganser (4578772)
Anton Hospach (3415982)
Hans-Iko Huppertz (344746)
Kirsten Mönkemöller (785826)
Ulrich Neudorf (4787082)
Elisabeth Weißbarth-Riedel (4787088)
Helmut Wittkowski (4787076)
Gerd Horneff (3415988)
Dirk Foell (249589)

January 2018

Expert opinion on individual management steps in various case scenarios reflecting the spectrum of s...

Additional file 2: of Similar alteration for mental and physical aspects in health-related quality of life over 5 to 8 years in 1347 patients with early arthritis and early inflammatory back pain

Déborah Puyraimond-Zemmour (6381269)
Benjamin Granger (5586698)
Anna Molto (6381272)
Cécile Gaujoux-Viala (6381275)
Francis Guillemin (91597)
Adeline Ruyssen-Witrand (408283)
Maxime Dougados (12589)
Bruno Fautrel (143749)
Laure Gossec (4058521)

February 2019

Table S2. Characteristics of patients in each trajectory of 566 patients in early arthritis and 459 ...

Holger Kudela (6409178)
Susanne Drynda (2099)
Anke Lux (3161460)
Gerd Horneff (3415988)
Joern Kekow (51973)

February 2019

Table S1. List of main diganoses in adult control group. Table S2. List of diseases in childrenâs ...

Additional file 1: Table S1. of Patientâs experiences with the care for juvenile idiopathic arthritis across Europe

Abstract

Extracted data

Additional file 1: Table S1. of Patientâs experiences with the care for juvenile idiopathic arthritis across Europe

Abstract

Extracted data

Related items

Related items

Additional file 1: Table S1. of Patientâs experiences with the care for juvenile idiopathic arthritis across Europe

Abstract

Extracted data

Additional file 1: Table S1. of Patientâs experiences with the care for juvenile idiopathic arthritis across Europe

Abstract

Extracted data

Related items

Related items

Additional file 1: Table S1. of Patientâs experiences with the care for juvenile idiopathic arthritis across Europe

Additional file 1: Table S1. of Patientâs experiences with the care for juvenile idiopathic arthritis across Europe