Parenting a child with haemophilia while living in a non-metropolitan area

The experience of living in a non-metropolitan area and\ud parenting a child with haemophilia is relatively unknown.\ud Using Interpretive Phenomenological Analysis (IPA),\ud the following study explored the experiences of seven\ud parents, from which four themes emerged: ‘bearing the\ud brunt of diagnosis’ captures the impact of the diagnosis;\ud ‘if you can’t help me, who can?’ reveals experiences with\ud the health system; ‘tackling the challenge of treatment’\ud encompasses difficulties in adhering to the treatment\ud regime; ‘I need you to understand’ reflects desires for\ud others support and understanding. These themes should\ud be considered when developing support systems and\ud interventions for parents living in non-metropolitan areas