Wellbeing and engagement in occupation for people with Parkinson's Disease

Introduction: Wellbeing is an important goal and outcome measure for people living with Parkinson’s disease. Previous wellbeing studies have used standardised measures and not explored the individual understandings of wellbeing and how it is affected by engagement in meaningful occupations. The aim of this study was to explore individual definitions of wellbeing and perceived associations between engagement in daily occupations and wellbeing for people living at home with Parkinson’s disease. Method: A qualitative descriptive design was used. Participants completed 24-hour time diaries prior to completing semi-structured interviews which explored participants’ individual definitions of wellbeing and perceptions of associations between wellbeing and engagement in occupation. Transcribed interviews were analysed using thematic analysis. Results: Seventeen participants were recruited and 11 completed interviews. Participants defined wellbeing in terms of independence and satisfaction in being able to contribute to others’ lives. Participants identified engagement in meaningful occupation as supporting their wellbeing and maintaining relationships and identity. Conclusion: This study expands what is known about wellbeing for people living with Parkinson’s disease. Understanding the individual meaning of wellbeing and facilitating engagement in the occupations individuals with Parkinson’s disease identify as meaningful may assist them to maintain wellbeing despite the presence of disease