Pediatric Pulmonology 48:123–129 (2013) Original Articles Evaluation of Genetic Counseling Among Cystic

Summary. Objective: A quality improvement (QI) strategy to improve the rate of genetic counseling (GC) services was initiated in cystic fibrosis (CF) care Center E in 2010. This state-wide study was conducted to determine: (1) GC rates before and after implementation of the QI strategy at Center E; (2) characteristics associated with not receiving GC; and (3) topic areas addressed during GC. Methods: The retrospective study included 1,097 CF carriers born from 2008 to 2011 identified through Michigan’s Newborn Screening Program. Rate of GC services was determined for Center E and the other four CF centers before and after the QI change. Bivariate and multivariable logistic regression was used to determine associations between select characteristics and not receiving GC. Topic areas discussed during GC ses-sions were assessed using frequency tables. Results: Rate of GC services in Center E in-creased from 23 % in 2008–2010 to 91 % in 2011, while at the other centers approximately 92% received GC services across those years. In 2008–2010, being seen at Center E and black race were significantly associated with increased likelihood of not receiving GC services in adjusted analyses. In 2011, neither characteristic was associated with receipt of GC. Of 16 target topic areas, all were discussed in 85 % of GC sessions. Conclusions: Implementing a Q