doi:10.1093/ndt/gfi160 Original Article

Establishing core outcome domains in pediatric kidney disease : report of the Standardized Outcomes in Nephrology-Children and Adolescents (SONG-KIDS) consensus workshops

Hanson, Camilla S.
Craig, Jonathan C.
Logeman, Charlotte
Sinha, Aditi
Dart, Allison
Eddy, Allison A.
Guha, Chandana
Gipson, Debbie S.
Bockenhauer, Detlef
Yap, Hui-Kim
Groothoff, Jaap
Zappitelli, Michael
Webb, Nicholas J.A.
Alexander, Stephen I.
Furth, Susan L.
Samuel, Susan
Neu, Alicia
Viecelli, Andrea K.
Ju, Angela
Sharma, Ankit
Au, Eric H.
Desmond, Hailey
Shen, Jenny I.
Manera, Karine E.
Azukaitis, Karolis
Dunn, Louese
Carter, Simon A.
Gutman, Talia
Cho, Yeoungjee
Walker, Amanda
Francis, Anna
Sanchez-Kazi, Cheryl
Kausman, Joshua
Pearl, Meghan
Benador, Nadine
Sahey, Shobha
Tong, Allison
Van Biesen, Wim
on behalf of the SONG-Kids consensus workshops investigators, [ missing ]

January 2020

Trials in children with chronic kidney disease do not consistently report outcomes that are critical...

Decision making in extreme situations involving children: withholding or withdrawal of life supporting treatment in paediatric care. Statement of the ethics working group of the Confederation of the European Specialists of Paediatrics (CESP)

Kurz, R

April 2001

Paediatricians increasingly find themselves in situations in which decisions must be made regarding ...

Palliative care for children and young people with stage 5 chronic kidney disease

Craig, Finella
Henderson, Ellen M.
Patel, Bhumik
Murtagh, Fliss E.M.
Bluebond-Langner, Myra

May 2021

Death from stage 5 chronic kidney disease (CKD 5) in childhood or adolescence is rare, but something...

Original Article

Isabelle Fauriel
Nathalie Duchange
Luc Montuclard
Marie-laure Moutard
Pierre Cochat

April 2015

Decision making concerning life-sustaining treatment in paediatric nephrology: professionals ’ exper...

Decision making concerning life-sustaining treatment in paediatric nephrology: professionals' experiences and values.

Fauriel, Isabelle
Moutel, Grégoire
Duchange, Nathalie
Montuclard, Luc
Moutard, Marie-Laure
Cochat, Pierre
Hervé, Christian

December 2005

BACKGROUND: In a previous article, we studied decisions to withhold or withdraw life-sustaining trea...

Decisions concerning potentially life-sustaining treatments in paediatric nephrology: a multicentre study in French-speaking countries.

Fauriel, Isabelle
Moutel, Grégoire
Moutard, Marie-Laure
Montuclard, Luc
Duchange, Nathalie
Callies, Ingrid
François, Irène
Cochat, Pierre
Hervé, Christian

January 2004

BACKGROUND: Few studies have looked at how decisions are made to withhold or to withdraw potentially...

Parent decision-making for children with End Stage Renal Disease (ESRD) : description, interpretation, and implications

Koch, Kendra Dianne

November 2019

In 2015, 224 infants in the United States were diagnosed with end-stage renal disease (ESRD). Infant...

Decision making in extreme situations involving children:withholding or withdrawal of life supporting treatment in paediatric care. Statement of the ethics working group of the Confederation of the European Specialists of Paediatrics (CESP)

Kurz, R

April 2001

Paediatricians increasingly find themselves in situations in which decisions must be made regarding ...

Establishing core outcome domains in pediatric kidney disease: report of the Standardized Outcomes in Nephrology-Children and Adolescents (SONG-KIDS) consensus workshops

Hanson, Camilla S
Craig, Jonathan C
Logeman, Charlotte
Sinha, Aditi
Dart, Allison
Eddy, Allison A
Guha, Chandana
Gipson, Debbie S
Bockenhauer, Detlef
Yap, Hui-Kim
Groothoff, Jaap
Zappitelli, Michael
Webb, Nicholas JA
Alexander, Stephen
Furth, Susan L
Samuel, Susan
Neu, Alicia
Viecelli, Andrea K
Ju, Angela
Sharma, Ankit
Au, Eric H
Desmond, Hailey
Shen, Jenny
Manera, Karine E
Azukaitis, Karolis
Dunn, Louese
Carter, Simon A
Gutman, Talia
Cho, Yeoungjee
Walker, Amanda
Francis, Anna
Sanchez-Kazi, Cheryl
Kausman, Joshua
Pearl, Meghan
Benador, Nadine
Sahney, Shobha
Tong, Allison

July 2020

Trials in children with chronic kidney disease do not consistently report outcomes that are critical...

Establishing core outcome domains in pediatric kidney disease: report of the Standardized Outcomes in Nephrology—Children and Adolescents (SONG-KIDS) consensus workshops

Hanson, Camilla S.
Craig, Jonathan C.
Logeman, Charlotte
Sinha, Aditi
Dart, Allison
Eddy, Allison A.
Guha, Chandana
Gipson, Debbie S.
Bockenhauer, Detlef
Yap, Hui-Kim
Groothoff, Jaap
Zappitelli, Michael
Webb, Nicholas J. A.
Alexander, Stephen I.
Furth, Susan L.
Samuel, Susan
Neu, Alicia
Viecelli, Andrea K.
Ju, Angela
Sharma, Ankit
Au, Eric H.
Desmond, Hailey
Shen, Jenny I.
Manera, Karine E.
Azukaitis, Karolis
Dunn, Louese
Carter, Simon A.
Gutman, Talia
Cho, Yeoungjee
Walker, Amanda
Francis, Anna
Sanchez-Kazi, Cheryl
Kausman, Joshua
Pearl, Meghan
Benador, Nadine
Sahney, Shobha
Tong, Allison
Guha, Abhjit
Solarin, Adaobi
Platona, Adriana
Hamilton, Alexander
Woods-Barnard, Alice
Eddy, Allison
Karathanas, Alyssa
Baumgart, Amanda
Fielding, Amelia
LePage, Amelia
Bernier-Jean, Amelie
Kelly, Amy
Teixeira, Ana
Viecelli, Andrea
Matus, Andrea
Narva, Andrew
Wang, Angela Yee-Moon
Fielding, Anna
Meza, Anthony
Fielding, Aria
Teixeira-Pinto, Armando
Bagga, Arvind
Jankauskienė, Augustina
Kelly, Ayano
Gillespie, Barbara
Sautenet, Benedicte
Vogt, Beth
Foster, Bethany
Warady, Bradley
Dixon, Bradley
Manns, Braden
Hemmelgarn, Brenda
Bscardark, Brittney
Romeo, Brooklyn
Hanson, Camilla
Meza, Carlos
Brockett, Carter
Prestidge, Chanel
Green, Charmaine
Perkins, Christy
Schmitt, Claus Peter
Fielding, Craig
Settee, Craig
Sumpton, Daniel
Meza, Daniel
Karathanas, Darien
Harris, David
Wheeler, David
Hooper, David
Gipson, Debbie
Geary, Denis
Haffner, Dieter
Mekahli, Djalila
Drozdz, Dorota
Romeo, Ed
Ku, Elaine
Urbina, Elaine
Levtchenko, Elena
Balovlenkov, Elena
Hodson, Elisabeth
Morales, Emily
O'Lone, Emma
Machuca, Emma
Carlton, Emmah
Au, Eric
Olver, Erin
Morales, Estefania
Mirza, Fatima
Mackie, Fiona
Tentori, Francesca
Schaefer, Franz
Higgins, Gail
Deschenes, Georges
Plunkett, Georgia
Yoder, Gerilyn
Wong, Germaine
Morales, Giselle
Germino, Greg
Perkins, Hayley
Mitchell-Smith, Harrison
Coolican, Helen
Xu, Hong
Anochie, Ifeoma
Ha, Il-Soo
Davis, Ira
Liu, Isaac
Samaniego, Israel
Machuca, Jaime
Machuca, James
Kerklaan, Jasmijn
Brockett, Jeff
Norton, Jenna
Shen, Jenny
Goebel, Jens
Rao, Jia
Machuca, Jimmy
Mitchell-Smith, Jo
Watson, Jo
Gill, John
Craig, Jonathan
Flynn, Joseph T.
Samuels, Joshua
Bacchetta, Justine
Yoder, Kaleb
Manera, Karine
Twombley, Katherine
McMichael, Kelly-Ann
Ishikura, Kenji
Romeo, Kennedy
Settee, Kevin
van, Kim Linh
McMichael, Lachlan
Trinh, Lany
Greenbaum, Larry
Sanchez, Laura
Fielding, Leo
Rees, Lesley
Lippincott, Leslie
Mejia-Saldivar, Levi
Saldivar, Lidia
Guay-Woodford, Lisa
Samaniego, Lizett
Hamiwka, Lorraine
Bell, Lorraine
Barry, Lucinda
Macauley, Luke
Holmes, Luke
Karathanas, Madelynn
Mitchell-Smith, Madison
Walker, Mandy
Benavides, Manuel
Tonelli, Marcello
Ferris, Maria
Vivarelli, Marina
Wolfenden, Mark
Howell, Martin
Christian, Martin
Schreiber, Martin
Moxey-Mims, Marva
Leonard, Mary
Karathanas, Matthew
Natatmadja, Melissa
Brockett, Melissa
Bonilla-Felix, Melvin
Atkinson, Meredith
Baum, Michel
Rheault, Michelle
McCulloch, Mignon
Matsuda-Abedini, Mina
Michael, Mini
Khan, Mohammad
Salih, Mohammad
Carlton, Mycah Ann
Plunkett, Ngairre
Webb, Nick
Scholes-Robertson, Nicki
Larkins, Nicolas
Evangelidis, Nicole
Yoder, Nigel
Meza, Norma
Olver, Paige
Carlton, Paiyton
Brophy, Patrick
Tugwell, Peter
Cochat, Pierre
Mehrotra, Rajnish
Wolfenden, Raphael
Gbadegesin, Rasheed
Benavides, Raymond
Johnson, Rebecca
Morales, Ricardo
McGee, Richard
Fish, Richard
Gardos, Robert
Pecoits-Filho, Roberto
Vargas, Rocio
Saldivar, Rodolfo
Coppo, Rosanna
Shroff, Rukshana
Raina, Rupesh
Youssouf, Sajeda
Crowe, Sally
Anumudu, Samaya
Chan, Samuel
Baldacchino, Sarah
Wenderfer, Scott
Wolfenden, Sebastian
Carlton, Selah
Sutton, Shanna
Murphy, Shannon
Teo, Sharon
Salih, Sheyma
Carlton, Silas
Carter, Simon
Pearson, Simone
Khan, Simra
Wilson, Skyla
Sharma, Sonia
Alexander, Stephen
Marks, Stephen
Cornish, Stephen
Goldstein, Stuart
Furth, Susan
Mendley, Susan
Lippincott, Susan
Charles, Symone
Mitchell-Smith, Terri
Harris, Tess
Vetter, Thorsten
Carlton, Tiffany
Carlton, Timothy
Querfeld, Uwe
Saglimbene, Valeria
Charles, Virginia
van Biesen, Wim
Winkelmayer, Wolfgang
Machuca, Yenissey
Salih, Yusuf
Anh, Yo Han
Perkins, Zachary
Salih, Zeynab

September 2020

Trials in children with chronic kidney disease do not consistently report outcomes that are critical...

Establishing core outcome domains in pediatric kidney disease : report of the Standardized Outcomes in Nephrology-Children and Adolescents (SONG-KIDS) consensus workshops

Hanson, Camilla S.
Craig, Jonathan C.
Logeman, Charlotte
Sinha, Aditi
Dart, Allison
Eddy, Allison A.
Guha, Chandana
Gipson, Debbie S.
Bockenhauer, Detlef
Yap, Hui-Kim
Groothoff, Jaap
Zappitelli, Michael
Webb, Nicholas J.A.
Alexander, Stephen I.
Furth, Susan L.
Samuel, Susan
Neu, Alicia
Viecelli, Andrea K.
Ju, Angela
Sharma, Ankit
Au, Eric H.
Desmond, Hailey
Shen, Jenny I.
Manera, Karine E.
Azukaitis, Karolis
Dunn, Louese
Carter, Simon A.
Gutman, Talia
Cho, Yeoungjee
Walker, Amanda
Francis, Anna
Sanchez-Kazi, Cheryl
Kausman, Joshua
Pearl, Meghan
Benador, Nadine
Sahey, Shobha
Tong, Allison
Van Biesen, Wim
on behalf of the SONG-Kids consensus workshops investigators, [ missing ]

January 2020

Trials in children with chronic kidney disease do not consistently report outcomes that are critical...

Decision making in extreme situations involving children: withholding or withdrawal of life supporting treatment in paediatric care. Statement of the ethics working group of the Confederation of the European Specialists of Paediatrics (CESP)

Kurz, R

April 2001

Paediatricians increasingly find themselves in situations in which decisions must be made regarding ...

Palliative care for children and young people with stage 5 chronic kidney disease

Craig, Finella
Henderson, Ellen M.
Patel, Bhumik
Murtagh, Fliss E.M.
Bluebond-Langner, Myra

May 2021

Death from stage 5 chronic kidney disease (CKD 5) in childhood or adolescence is rare, but something...

Original Article

Isabelle Fauriel
Nathalie Duchange
Luc Montuclard
Marie-laure Moutard
Pierre Cochat

April 2015

Decision making concerning life-sustaining treatment in paediatric nephrology: professionals ’ exper...

Decision making concerning life-sustaining treatment in paediatric nephrology: professionals' experiences and values.

Fauriel, Isabelle
Moutel, Grégoire
Duchange, Nathalie
Montuclard, Luc
Moutard, Marie-Laure
Cochat, Pierre
Hervé, Christian

December 2005

BACKGROUND: In a previous article, we studied decisions to withhold or withdraw life-sustaining trea...

Decisions concerning potentially life-sustaining treatments in paediatric nephrology: a multicentre study in French-speaking countries.

Fauriel, Isabelle
Moutel, Grégoire
Moutard, Marie-Laure
Montuclard, Luc
Duchange, Nathalie
Callies, Ingrid
François, Irène
Cochat, Pierre
Hervé, Christian

January 2004

BACKGROUND: Few studies have looked at how decisions are made to withhold or to withdraw potentially...

Parent decision-making for children with End Stage Renal Disease (ESRD) : description, interpretation, and implications

Koch, Kendra Dianne

November 2019

In 2015, 224 infants in the United States were diagnosed with end-stage renal disease (ESRD). Infant...

Decision making in extreme situations involving children:withholding or withdrawal of life supporting treatment in paediatric care. Statement of the ethics working group of the Confederation of the European Specialists of Paediatrics (CESP)

Kurz, R

April 2001

Paediatricians increasingly find themselves in situations in which decisions must be made regarding ...

Establishing core outcome domains in pediatric kidney disease: report of the Standardized Outcomes in Nephrology-Children and Adolescents (SONG-KIDS) consensus workshops

Hanson, Camilla S
Craig, Jonathan C
Logeman, Charlotte
Sinha, Aditi
Dart, Allison
Eddy, Allison A
Guha, Chandana
Gipson, Debbie S
Bockenhauer, Detlef
Yap, Hui-Kim
Groothoff, Jaap
Zappitelli, Michael
Webb, Nicholas JA
Alexander, Stephen
Furth, Susan L
Samuel, Susan
Neu, Alicia
Viecelli, Andrea K
Ju, Angela
Sharma, Ankit
Au, Eric H
Desmond, Hailey
Shen, Jenny
Manera, Karine E
Azukaitis, Karolis
Dunn, Louese
Carter, Simon A
Gutman, Talia
Cho, Yeoungjee
Walker, Amanda
Francis, Anna
Sanchez-Kazi, Cheryl
Kausman, Joshua
Pearl, Meghan
Benador, Nadine
Sahney, Shobha
Tong, Allison

July 2020

Trials in children with chronic kidney disease do not consistently report outcomes that are critical...

Establishing core outcome domains in pediatric kidney disease: report of the Standardized Outcomes in Nephrology—Children and Adolescents (SONG-KIDS) consensus workshops

Hanson, Camilla S.
Craig, Jonathan C.
Logeman, Charlotte
Sinha, Aditi
Dart, Allison
Eddy, Allison A.
Guha, Chandana
Gipson, Debbie S.
Bockenhauer, Detlef
Yap, Hui-Kim
Groothoff, Jaap
Zappitelli, Michael
Webb, Nicholas J. A.
Alexander, Stephen I.
Furth, Susan L.
Samuel, Susan
Neu, Alicia
Viecelli, Andrea K.
Ju, Angela
Sharma, Ankit
Au, Eric H.
Desmond, Hailey
Shen, Jenny I.
Manera, Karine E.
Azukaitis, Karolis
Dunn, Louese
Carter, Simon A.
Gutman, Talia
Cho, Yeoungjee
Walker, Amanda
Francis, Anna
Sanchez-Kazi, Cheryl
Kausman, Joshua
Pearl, Meghan
Benador, Nadine
Sahney, Shobha
Tong, Allison
Guha, Abhjit
Solarin, Adaobi
Platona, Adriana
Hamilton, Alexander
Woods-Barnard, Alice
Eddy, Allison
Karathanas, Alyssa
Baumgart, Amanda
Fielding, Amelia
LePage, Amelia
Bernier-Jean, Amelie
Kelly, Amy
Teixeira, Ana
Viecelli, Andrea
Matus, Andrea
Narva, Andrew
Wang, Angela Yee-Moon
Fielding, Anna
Meza, Anthony
Fielding, Aria
Teixeira-Pinto, Armando
Bagga, Arvind
Jankauskienė, Augustina
Kelly, Ayano
Gillespie, Barbara
Sautenet, Benedicte
Vogt, Beth
Foster, Bethany
Warady, Bradley
Dixon, Bradley
Manns, Braden
Hemmelgarn, Brenda
Bscardark, Brittney
Romeo, Brooklyn
Hanson, Camilla
Meza, Carlos
Brockett, Carter
Prestidge, Chanel
Green, Charmaine
Perkins, Christy
Schmitt, Claus Peter
Fielding, Craig
Settee, Craig
Sumpton, Daniel
Meza, Daniel
Karathanas, Darien
Harris, David
Wheeler, David
Hooper, David
Gipson, Debbie
Geary, Denis
Haffner, Dieter
Mekahli, Djalila
Drozdz, Dorota
Romeo, Ed
Ku, Elaine
Urbina, Elaine
Levtchenko, Elena
Balovlenkov, Elena
Hodson, Elisabeth
Morales, Emily
O'Lone, Emma
Machuca, Emma
Carlton, Emmah
Au, Eric
Olver, Erin
Morales, Estefania
Mirza, Fatima
Mackie, Fiona
Tentori, Francesca
Schaefer, Franz
Higgins, Gail
Deschenes, Georges
Plunkett, Georgia
Yoder, Gerilyn
Wong, Germaine
Morales, Giselle
Germino, Greg
Perkins, Hayley
Mitchell-Smith, Harrison
Coolican, Helen
Xu, Hong
Anochie, Ifeoma
Ha, Il-Soo
Davis, Ira
Liu, Isaac
Samaniego, Israel
Machuca, Jaime
Machuca, James
Kerklaan, Jasmijn
Brockett, Jeff
Norton, Jenna
Shen, Jenny
Goebel, Jens
Rao, Jia
Machuca, Jimmy
Mitchell-Smith, Jo
Watson, Jo
Gill, John
Craig, Jonathan
Flynn, Joseph T.
Samuels, Joshua
Bacchetta, Justine
Yoder, Kaleb
Manera, Karine
Twombley, Katherine
McMichael, Kelly-Ann
Ishikura, Kenji
Romeo, Kennedy
Settee, Kevin
van, Kim Linh
McMichael, Lachlan
Trinh, Lany
Greenbaum, Larry
Sanchez, Laura
Fielding, Leo
Rees, Lesley
Lippincott, Leslie
Mejia-Saldivar, Levi
Saldivar, Lidia
Guay-Woodford, Lisa
Samaniego, Lizett
Hamiwka, Lorraine
Bell, Lorraine
Barry, Lucinda
Macauley, Luke
Holmes, Luke
Karathanas, Madelynn
Mitchell-Smith, Madison
Walker, Mandy
Benavides, Manuel
Tonelli, Marcello
Ferris, Maria
Vivarelli, Marina
Wolfenden, Mark
Howell, Martin
Christian, Martin
Schreiber, Martin
Moxey-Mims, Marva
Leonard, Mary
Karathanas, Matthew
Natatmadja, Melissa
Brockett, Melissa
Bonilla-Felix, Melvin
Atkinson, Meredith
Baum, Michel
Rheault, Michelle
McCulloch, Mignon
Matsuda-Abedini, Mina
Michael, Mini
Khan, Mohammad
Salih, Mohammad
Carlton, Mycah Ann
Plunkett, Ngairre
Webb, Nick
Scholes-Robertson, Nicki
Larkins, Nicolas
Evangelidis, Nicole
Yoder, Nigel
Meza, Norma
Olver, Paige
Carlton, Paiyton
Brophy, Patrick
Tugwell, Peter
Cochat, Pierre
Mehrotra, Rajnish
Wolfenden, Raphael
Gbadegesin, Rasheed
Benavides, Raymond
Johnson, Rebecca
Morales, Ricardo
McGee, Richard
Fish, Richard
Gardos, Robert
Pecoits-Filho, Roberto
Vargas, Rocio
Saldivar, Rodolfo
Coppo, Rosanna
Shroff, Rukshana
Raina, Rupesh
Youssouf, Sajeda
Crowe, Sally
Anumudu, Samaya
Chan, Samuel
Baldacchino, Sarah
Wenderfer, Scott
Wolfenden, Sebastian
Carlton, Selah
Sutton, Shanna
Murphy, Shannon
Teo, Sharon
Salih, Sheyma
Carlton, Silas
Carter, Simon
Pearson, Simone
Khan, Simra
Wilson, Skyla
Sharma, Sonia
Alexander, Stephen
Marks, Stephen
Cornish, Stephen
Goldstein, Stuart
Furth, Susan
Mendley, Susan
Lippincott, Susan
Charles, Symone
Mitchell-Smith, Terri
Harris, Tess
Vetter, Thorsten
Carlton, Tiffany
Carlton, Timothy
Querfeld, Uwe
Saglimbene, Valeria
Charles, Virginia
van Biesen, Wim
Winkelmayer, Wolfgang
Machuca, Yenissey
Salih, Yusuf
Anh, Yo Han
Perkins, Zachary
Salih, Zeynab

September 2020

Trials in children with chronic kidney disease do not consistently report outcomes that are critical...

Establishing core outcome domains in pediatric kidney disease : report of the Standardized Outcomes in Nephrology-Children and Adolescents (SONG-KIDS) consensus workshops

Hanson, Camilla S.
Craig, Jonathan C.
Logeman, Charlotte
Sinha, Aditi
Dart, Allison
Eddy, Allison A.
Guha, Chandana
Gipson, Debbie S.
Bockenhauer, Detlef
Yap, Hui-Kim
Groothoff, Jaap
Zappitelli, Michael
Webb, Nicholas J.A.
Alexander, Stephen I.
Furth, Susan L.
Samuel, Susan
Neu, Alicia
Viecelli, Andrea K.
Ju, Angela
Sharma, Ankit
Au, Eric H.
Desmond, Hailey
Shen, Jenny I.
Manera, Karine E.
Azukaitis, Karolis
Dunn, Louese
Carter, Simon A.
Gutman, Talia
Cho, Yeoungjee
Walker, Amanda
Francis, Anna
Sanchez-Kazi, Cheryl
Kausman, Joshua
Pearl, Meghan
Benador, Nadine
Sahey, Shobha
Tong, Allison
Van Biesen, Wim
on behalf of the SONG-Kids consensus workshops investigators, [ missing ]

January 2020

Trials in children with chronic kidney disease do not consistently report outcomes that are critical...

Decision making in extreme situations involving children: withholding or withdrawal of life supporting treatment in paediatric care. Statement of the ethics working group of the Confederation of the European Specialists of Paediatrics (CESP)

Kurz, R

April 2001

Paediatricians increasingly find themselves in situations in which decisions must be made regarding ...

Palliative care for children and young people with stage 5 chronic kidney disease

Craig, Finella
Henderson, Ellen M.
Patel, Bhumik
Murtagh, Fliss E.M.
Bluebond-Langner, Myra

May 2021

Death from stage 5 chronic kidney disease (CKD 5) in childhood or adolescence is rare, but something...

doi:10.1093/ndt/gfi160 Original Article

Abstract

Extracted data

doi:10.1093/ndt/gfi160 Original Article

Abstract

Extracted data

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