Memory Aids as Collaboration Technology

The loss of memory can have a profound and disabling effect on individuals. People who acquire memory impairments are often unable to live independent lives because they cannot remember what they need to do. In many cases, they rely on family members who live with them. When I carried out ethnographic fieldwork to explore this domain, I observed that individuals with amnesia were surrounded by family members who provided extensive memory support (e.g. reminders). I found that such families very worked closely together to accomplish everyday activities, such as coordinating a family outing or planning a doctor’s appointment. However, these activities were often undermined by family members forgetting. This led me to view memory aids as collaboration technology, rather than as tools that only support an individual’s memory. My dissertation explores this idea and how it can lead to more appropriate designs of assistive technology. To design collaborative assistive technology, I involved persons with amnesia and their family members in a process of participatory design. The design team included six individuals with amnesia, two neuropsychologists, and myself. Five family members were also involved in late