In ethical and regulatory discussions on new applications of genomic testing technologies, the notion of ‘personal utility ’ has been mentioned repeatedly. It has been used to justify direct access to commercially offered genomic testing or feedback of individual research results to research or biobank participants. Sometimes research participants or consumers claim a right to genomic information with an appeal to personal utility. As of yet, no systematic account of the umbrella notion of personal utility has been given. This paper offers a definition of personal utility that places it in the middle of the spectrum between clinical utility and personal perceptions of utility, and that acknowledges its normative charge. The paper discusses ...
textabstractBackground: As genetics technology proceeds, practices of genetic testing have become mo...
This paper argues that it will be important for new genomic technologies to recognize the limits of ...
Background and objectivesSuccessful clinical integration of genomic sequencing (GS) requires evidenc...
In ethical and regulatory discussions on new applications of genomic testing technologies, the notio...
Researchers and clinicians refer to outcomes of genomic testing that extend beyond clinical utility ...
<p>In the evaluation of genomic high-throughput technologies, the idea of “utility” plays an importa...
Background: With the rapid integration of new sequencing technologies, researchers and clinicians r...
Importance: Expansion in the clinical use of genetic and genomic testing has led to a recognition th...
Prior to integration into clinical care, a novel medical innovation is typically assessed in terms o...
In genomic research the ideal standard of free, informed, prior, and explicit consent is believed to...
Background: Personal genomic testing (PGT) offers individuals genetic information about relationship...
One point of consensus in the otherwise very controversial discussion about the benefits and dangers...
There is growing impetus to include measures of personal utility, the nonmedical value of informatio...
Evidence-based guidelines on the use of genetic tests in clin ical practice require a systematic ass...
AbstractOne point of consensus in the otherwise very controversial discussion about the benefits and...
textabstractBackground: As genetics technology proceeds, practices of genetic testing have become mo...
This paper argues that it will be important for new genomic technologies to recognize the limits of ...
Background and objectivesSuccessful clinical integration of genomic sequencing (GS) requires evidenc...
In ethical and regulatory discussions on new applications of genomic testing technologies, the notio...
Researchers and clinicians refer to outcomes of genomic testing that extend beyond clinical utility ...
<p>In the evaluation of genomic high-throughput technologies, the idea of “utility” plays an importa...
Background: With the rapid integration of new sequencing technologies, researchers and clinicians r...
Importance: Expansion in the clinical use of genetic and genomic testing has led to a recognition th...
Prior to integration into clinical care, a novel medical innovation is typically assessed in terms o...
In genomic research the ideal standard of free, informed, prior, and explicit consent is believed to...
Background: Personal genomic testing (PGT) offers individuals genetic information about relationship...
One point of consensus in the otherwise very controversial discussion about the benefits and dangers...
There is growing impetus to include measures of personal utility, the nonmedical value of informatio...
Evidence-based guidelines on the use of genetic tests in clin ical practice require a systematic ass...
AbstractOne point of consensus in the otherwise very controversial discussion about the benefits and...
textabstractBackground: As genetics technology proceeds, practices of genetic testing have become mo...
This paper argues that it will be important for new genomic technologies to recognize the limits of ...
Background and objectivesSuccessful clinical integration of genomic sequencing (GS) requires evidenc...