Family experiences in the journey through dementia diagnosis and care

Families caring for loved ones with dementia encounter multiple challenges. This study aimed to describe experiences of families seeking diagnosis and subsequent care and treatment for relatives with dementia. Using a descrip-tive qualitative approach, 14 family caregivers living in diverse areas of Kan-sas were interviewed regarding their experiences with dementia diagnosis and treatment. Initially uncertain about symptom interpretation, caregivers encountered marked delays in getting a diagnosis once they sought medical care. The diagnostic process often took several years and visits to numerous physicians, required considerable diligence, and ultimately resulted in feel-ings of mistrust toward the medical community. Caregivers described the physical and emotional strain of providing care, although support groups facilitated access to some educational and community resources. Nurses are in an opportune position to educate families about dementia and caregiving and to ease the considerable challenges they face by providing more active support during the diagnosis and care process