Quality of Life and Inflammatory Bowel Disease: research and clinic. Arq Hepato-Gasterenterol

Background & Aims. The health related quality of life (HR-QoL) construct was introduced as a requirement to assess the subjective health status. It is a multifaceted construct that has contributed to a better understanding of the patients ’ adaptation to his condition. The Inflammatory Bowel Disease Questionnaire (IBDQ), a widely used instrument to assess QoL among IBD patients, has already shown its validity and reliability. Our aim was to obtain an easier revised version of the (IBDQ-R) and to investigate its cross-cultural psychometric properties. Method. Carried out in a sample of outpatients recruited in a specialized University Clinic (n=76), this study began with the translation and linguistic validation of a self-report 32-item version of the questionnaire with a 7-point Likert type answering system. We assessed thereafter its reliability through internal consistencies and also looked into its discriminatory power. We also investigated its convergent validity with other health status- clinical assessment, SCDAI and CDAI-m- and well-being measures. Results. With a Cronbach’s alpha = 0.92 for the global scale and a mean 0.82 for the subscales, internal consistencies proved adequate. On the other hand, discriminatory power was also significant according to the model. Moreover, the expected correlations between IBDQ and the clinical assessment, SCDAI, CDAI-m and perception of well-being support evidence of IBDQ-R’s convergent validity. Conclusion. This IBDQ revised version is a highly promising instrument to easily, yet feasibly and comprehensively, assess the quality of life in inflammatory bowel disease; therefore its use in daily practice is worthy to be recommended. Key words IBD – Crohn’s disease – ulcerative colitis – quality of life – validity – reliabilit