Spoudeas HA. Arch Dis Child

Five-year childhood cancer survival rates have increased to 80–90 % for some tumours due to intensified treatments and better supportive care imposed on an incidence stable over four decades.1 2 Between 2005 and 2012, the number of UK survivors has risen from 26 000 to 33 000, or from 1:1000 to 1:715 UK adults.3 4 However, 40 % experience chronic severe or life-threatening conse-quences (‘late effects’) of their tumour and/or its treatment.5 The recent National Cancer Survivorship Initiative (NCSI) has highlighted the unmet need in service provision for adult childhood cancer survivors, with a proposed sur-vivorship framework and stratified care pathways modelled on>20 years ’ prior experience.6 7 In March 2013, the Scottish Intercollegiate Guidelines Network (SIGN) published updated guidance on long-term follow-up of childhood cancer survivors to aid the ‘identification, assess-ment and management of late effects’ aimed at primary, secondary and tertiary healthcare practitioners.8 The Guideline Development Group (GDG) included representatives from paediatric haematol-ogy, oncology, endocrinology, reproduct-ive medicine, cardiology, general paediatrics and general practice, as well as a survivor