Restoring the Patient Control over her Medical History1

Paper-based folders have been widely used to coordinate cares in medical-social networks, but they introduce some burning issues (e.g. privacy protection, remote access to the folder). Replacing the paper-based folder system by a traditional Electronic Healthcare Record (EHR) introduces new drawbacks: forcing of the patient consent, unbounded data retention, no security guarantee outside the server domain and no disconnected access to the folder. To solve these problems, this paper proposes an experimental platform which combines an EHR system with medical-social folders embedded in a new hardware portable device. The objectives pursued are (1) to re-establish a natural and powerful way of protecting and sharing highly sensitive information among trusted parties and (2) to build a shared medical-social folder providing the highest degree of availability, whatever the mode of operation (disconnected or not). 1