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Development and implementation of the AIDA International Registry for patients with Periodic Fever, Aphthous stomatitis, Pharyngitis, and cervical Adenitis syndrome

January 2022

Objective: Aim of this paper is to illustrate the methodology, design, and development of the AutoIn...

Treatment of autoinflammatory diseases: results from the Eurofever Registry and a literature review.

Ter Haar, N.
Lachmann, H.
Özen, S.
Woo, P.
Uziel, Y.
Modesto, C.
Koné-Paut, I.
Cantarini, L.
Insalaco, A.
Neven, B.
Hofer, M.
Rigante, D.
Al-Mayouf, S.
Touitou, I.
Gallizzi, R.
Papadopoulou-Alataki, E.
Martino, S.
Kuemmerle-Deschner, J.
Obici, L.
Iagaru, N.
Simon, A.
Nielsen, S.
Martini, A.
Ruperto, N.
Gattorno, M.
Frenkel, J.

May 2013

To evaluate the response to treatment of autoinflammatory diseases from an international registry an...

Development and implementation of the AIDA International Registry for patients with Behçet’s disease

January 2022

Purpose of the present paper is to point out the design, development and deployment of the AutoInfla...

An international registry on autoinflammatory diseases: the Eurofever experience.

Toplak, N.
Frenkel, J.
Ozen, S.
Lachmann, H.J.
Woo, P.
Koné-Paut, I.
De Benedetti, F.
Neven, B.
Hofer, M.
Dolezalova, P.
Kümmerle-Deschner, J.
Touitou, I.
Hentgen, V.
Simon, A.
Girschick, H.
Rose, C.
Wouters, C.
Vesely, R.
Arostegui, J.
Stojanov, S.
Ozgodan, H.
Martini, A.
Ruperto, N.
Gattorno, M.
Eurofever, Projects

January 2012

OBJECTIVE: To report on the demographic data from the first 18 months of enrollment to an internatio...

An international registry on autoinflammatory diseases: the Eurofever experience

Toplak, N.
Frenkel, J.
Ozen, S.
Lachmann, H.J.
Woo, P.
Kone-Paut, I.
Benedetti, F. De
Neven, B.
Hofer, M.
Dolezalova, P.
Kummerle-Deschner, J.
Touitou, I.
Hentgen, V.
Simon, A.
Girschick, H.
Rose, C.
Wouters, C.
Vesely, R.
Arostegui, J.
Stojanov, S.
Ozgodan, H.
Martini, A.
Ruperto, N.
Gattorno, M.
Paediatric Rheumatology International Trials Organisation, E.
Eurofever, P.

January 2012

Item does not contain fulltextOBJECTIVE: To report on the demographic data from the first 18 months ...

The longitudinal Eurofever project: an update on enrollment.

Gueli I
Finetti M
De Benedetti F
Anton J
Alessio M
Frenkel J
Cantarini L
Gallizzi R
Sanchez Manubens J
Cattalini M
Papadopoulou-Alataki E
Cimaz R
Rigante D (ORCID:0000-0001-7032-7779)
Olivieri AN
Dolezalova P
Martini A
Ruperto N
Gattorno M

January 2019

In 2008 the Pediatric Rheumatology European Society (PReS) promoted an International Project for the...

The Autoinflammatory Diseases Alliance Registry of monogenic autoinflammatory diseases

January 2022

ObjectiveThe present manuscript aims to describe an international, electronic-based, user-friendly a...

Development and Implementation of the AIDA International Registry for Patients With Undifferentiated Systemic AutoInflammatory Diseases

January 2022

Objective: This paper points out the design, development and deployment of the AutoInflammatory Dise...

The Autoinflammatory Diseases Alliance Registry of monogenic autoinflammatory diseases.

January 2022

Objective: The present manuscript aims to describe an international, electronic-based, user-friendly...

Development and Implementation of the AIDA International Registry for Patients With Still's Disease

January 2022

Objective: Aim of this paper is to present the design, construction, and modalities of dissemination...

Development and implementation of the AIDA international registry for patients with Still's disease

January 2022

Objective: Aim of this paper is to present the design, construction, and modalities of dissemination...

Development and implementation of the AIDA International Registry for patients with Behçet's disease

July 2022

Purpose of the present paper is to point out the design, development and deployment of the AutoInfla...

Development and implementation of the AIDA International Registry for patients with Periodic Fever, Aphthous stomatitis, Pharyngitis, and cervical Adenitis syndrome

January 2022

Objective: Aim of this paper is to illustrate the methodology, design, and development of the AutoIn...

Treatment of autoinflammatory diseases: results from the Eurofever Registry and a literature review.

Ter Haar, N.
Lachmann, H.
Özen, S.
Woo, P.
Uziel, Y.
Modesto, C.
Koné-Paut, I.
Cantarini, L.
Insalaco, A.
Neven, B.
Hofer, M.
Rigante, D.
Al-Mayouf, S.
Touitou, I.
Gallizzi, R.
Papadopoulou-Alataki, E.
Martino, S.
Kuemmerle-Deschner, J.
Obici, L.
Iagaru, N.
Simon, A.
Nielsen, S.
Martini, A.
Ruperto, N.
Gattorno, M.
Frenkel, J.

May 2013

To evaluate the response to treatment of autoinflammatory diseases from an international registry an...

Development and implementation of the AIDA International Registry for patients with Behçet’s disease

January 2022

Purpose of the present paper is to point out the design, development and deployment of the AutoInfla...

An international registry on autoinflammatory diseases: the Eurofever experience.

Toplak, N.
Frenkel, J.
Ozen, S.
Lachmann, H.J.
Woo, P.
Koné-Paut, I.
De Benedetti, F.
Neven, B.
Hofer, M.
Dolezalova, P.
Kümmerle-Deschner, J.
Touitou, I.
Hentgen, V.
Simon, A.
Girschick, H.
Rose, C.
Wouters, C.
Vesely, R.
Arostegui, J.
Stojanov, S.
Ozgodan, H.
Martini, A.
Ruperto, N.
Gattorno, M.
Eurofever, Projects

January 2012

OBJECTIVE: To report on the demographic data from the first 18 months of enrollment to an internatio...

An international registry on autoinflammatory diseases: the Eurofever experience

Toplak, N.
Frenkel, J.
Ozen, S.
Lachmann, H.J.
Woo, P.
Kone-Paut, I.
Benedetti, F. De
Neven, B.
Hofer, M.
Dolezalova, P.
Kummerle-Deschner, J.
Touitou, I.
Hentgen, V.
Simon, A.
Girschick, H.
Rose, C.
Wouters, C.
Vesely, R.
Arostegui, J.
Stojanov, S.
Ozgodan, H.
Martini, A.
Ruperto, N.
Gattorno, M.
Paediatric Rheumatology International Trials Organisation, E.
Eurofever, P.

January 2012

Item does not contain fulltextOBJECTIVE: To report on the demographic data from the first 18 months ...

The longitudinal Eurofever project: an update on enrollment.

Gueli I
Finetti M
De Benedetti F
Anton J
Alessio M
Frenkel J
Cantarini L
Gallizzi R
Sanchez Manubens J
Cattalini M
Papadopoulou-Alataki E
Cimaz R
Rigante D (ORCID:0000-0001-7032-7779)
Olivieri AN
Dolezalova P
Martini A
Ruperto N
Gattorno M

January 2019

In 2008 the Pediatric Rheumatology European Society (PReS) promoted an International Project for the...

The Autoinflammatory Diseases Alliance Registry of monogenic autoinflammatory diseases

January 2022

ObjectiveThe present manuscript aims to describe an international, electronic-based, user-friendly a...

Development and Implementation of the AIDA International Registry for Patients With Undifferentiated Systemic AutoInflammatory Diseases

January 2022

Objective: This paper points out the design, development and deployment of the AutoInflammatory Dise...

The Autoinflammatory Diseases Alliance Registry of monogenic autoinflammatory diseases.

January 2022

Objective: The present manuscript aims to describe an international, electronic-based, user-friendly...

Development and Implementation of the AIDA International Registry for Patients With Still's Disease

January 2022

Objective: Aim of this paper is to present the design, construction, and modalities of dissemination...

Development and implementation of the AIDA international registry for patients with Still's disease

January 2022

Objective: Aim of this paper is to present the design, construction, and modalities of dissemination...

Development and implementation of the AIDA International Registry for patients with Behçet's disease

July 2022

Purpose of the present paper is to point out the design, development and deployment of the AutoInfla...

Development and implementation of the AIDA International Registry for patients with Periodic Fever, Aphthous stomatitis, Pharyngitis, and cervical Adenitis syndrome

January 2022

Objective: Aim of this paper is to illustrate the methodology, design, and development of the AutoIn...

Treatment of autoinflammatory diseases: results from the Eurofever Registry and a literature review.

Ter Haar, N.
Lachmann, H.
Özen, S.
Woo, P.
Uziel, Y.
Modesto, C.
Koné-Paut, I.
Cantarini, L.
Insalaco, A.
Neven, B.
Hofer, M.
Rigante, D.
Al-Mayouf, S.
Touitou, I.
Gallizzi, R.
Papadopoulou-Alataki, E.
Martino, S.
Kuemmerle-Deschner, J.
Obici, L.
Iagaru, N.
Simon, A.
Nielsen, S.
Martini, A.
Ruperto, N.
Gattorno, M.
Frenkel, J.

May 2013

To evaluate the response to treatment of autoinflammatory diseases from an international registry an...

Development and implementation of the AIDA International Registry for patients with Behçet’s disease

January 2022

Purpose of the present paper is to point out the design, development and deployment of the AutoInfla...