Miscellaneous

Genetic research and donation of tissue samples to biobanks. What do potential sample donors in the Swedish general public think? Åsa Kettis-Lindblad1, Lena Ring1,2, Eva Viberth1, Mats G. Hansson3 Background: The aim of this study was to identify perceptions of the general public regarding research involving human tissues; to assess the public’s willingness to donate samples to biobanks; and to identify factors associated with the willingness to donate samples.Methods: Cross-sectional survey. Postal ques-tionnaires to a random sample of the general public in Sweden, 18–80 years of age (n 6000) in October 2002 (response rate 49.4%; n 2928). Results: A majority of the respondents had a positive attitude towards genetic research. Their trust in authorities ’ capability to evaluate the risks and benefits of genetic research varied. Individual university/hospital-based researchers received the greatest trust, while the county councils (health care providers), and the Swedish Parliament received the lowest trust. Most respondents (86.0%) would donate a linked blood sample for research purposes. Another 3.0% would provide an anonymous sample. In total, 78 % of the respondents would agree to both donatio