Add to ORKGA pilot study on the effects of the transition of paediatric to adult health care in patients with haemophilia and in their parents: patient and parent worries, parental illness-relate
Background Haemophilia is one of the most common genetic disorders in the world. It is caused by fa...
Evaluated the correlates of mood state (psychological distress) in a multisite study of two groups: ...
Assessment of health-related quality of life (HRQoL) in haemophilia is important in order to provide...
The aim of this pilot study was to investigate the effects of the transition from paediatric to adul...
The aim of this pilot study was to investigate the effects of the transition from paediatric to adul...
Adolescence may be considered a phase of enormous physical and emotional change and instabilty. Prac...
Summary: Increased or maintained health and quality of life (HRQoL) are essential goals in health ca...
Introduction: Haemophilia is related to several clinical and psychosocial challenges that have been ...
Haemophilia is a complex condition to manage, especially for parents of newly diagnosed children, an...
In this thesis, three major elements in the research around growing up with hemophilia are presented...
Background: Despite a reduction in mortality rates, hemophilia patients continue to suffer the conse...
Introduction: Quality of life is one of the influencing factors in children with hemophilia. The qua...
‘The definitive version is available at www.blackwell-synergy.com '. Copyright Blackwell Publishing ...
Background/aim: Hemophilia is an inherited disease with serious repercussions. Psychiatric symptoms ...
2013-10-29"Burden of illness" is the negative impacts that an illness has on patients and their fami...
Background Haemophilia is one of the most common genetic disorders in the world. It is caused by fa...
Evaluated the correlates of mood state (psychological distress) in a multisite study of two groups: ...
Assessment of health-related quality of life (HRQoL) in haemophilia is important in order to provide...
The aim of this pilot study was to investigate the effects of the transition from paediatric to adul...
The aim of this pilot study was to investigate the effects of the transition from paediatric to adul...
Adolescence may be considered a phase of enormous physical and emotional change and instabilty. Prac...
Summary: Increased or maintained health and quality of life (HRQoL) are essential goals in health ca...
Introduction: Haemophilia is related to several clinical and psychosocial challenges that have been ...
Haemophilia is a complex condition to manage, especially for parents of newly diagnosed children, an...
In this thesis, three major elements in the research around growing up with hemophilia are presented...
Background: Despite a reduction in mortality rates, hemophilia patients continue to suffer the conse...
Introduction: Quality of life is one of the influencing factors in children with hemophilia. The qua...
‘The definitive version is available at www.blackwell-synergy.com '. Copyright Blackwell Publishing ...
Background/aim: Hemophilia is an inherited disease with serious repercussions. Psychiatric symptoms ...
2013-10-29"Burden of illness" is the negative impacts that an illness has on patients and their fami...
Background Haemophilia is one of the most common genetic disorders in the world. It is caused by fa...
Evaluated the correlates of mood state (psychological distress) in a multisite study of two groups: ...
Assessment of health-related quality of life (HRQoL) in haemophilia is important in order to provide...