Add to ORKGThe development of centres of expertise (CE) and European Reference Networks (ERN) in the field of rare diseases (RD) is encouraged in the Council Recommen-dation on an Action in the Field of RD (2009/C 151/02) (8 June 2009) and most recently in the Directive on the application of patients ’ rights in cross-border healthcare (2011/24/EU) (9 March 2011) as a means of organising care for thousands of heterogeneous RD affecting scat-tered patient populations across Europe. The European Union Committee of Experts on Rare Diseases (EUCER
While rare diseases (RDs) are by definition of low prevalence, the total number of patients sufferin...
International audienceBACKGROUND:Although rare disease patients make up approximately 6-8% of all pa...
In order to address the main challenges related to the rare diseases (RDs) the European Commission l...
The development of centres of expertise (CE) and European Reference Networks (ERN) in the field of r...
RARE-Bestpractices (http://www.rarebestpractices.eu) is a 4-year project (2013-2016) funded by the E...
Rare diseases (RD) patient registries are powerful instruments that help develop clinical research, ...
The Community added value of Centres of Expertise (CoE) and European Reference Networks (ERN) is par...
Rare diseases (RD) patient registries are powerful instruments that help develop clinical research, ...
European Reference Networks (ERNs) were founded on the principle that many rare disease (RD) issues ...
International audienceThe European Union Committee of Experts on Rare Diseases was entrusted with ai...
(ERN) is the physical or virtual networking of knowledge and expertise of national Centres of Expert...
New challenges and priorities are given in the EU Health programme 2007-2013. The objectives of the ...
While rare diseases (RDs) are by definition of low prevalence, the total number of patients sufferin...
International audienceBACKGROUND:Although rare disease patients make up approximately 6-8% of all pa...
In order to address the main challenges related to the rare diseases (RDs) the European Commission l...
The development of centres of expertise (CE) and European Reference Networks (ERN) in the field of r...
RARE-Bestpractices (http://www.rarebestpractices.eu) is a 4-year project (2013-2016) funded by the E...
Rare diseases (RD) patient registries are powerful instruments that help develop clinical research, ...
The Community added value of Centres of Expertise (CoE) and European Reference Networks (ERN) is par...
Rare diseases (RD) patient registries are powerful instruments that help develop clinical research, ...
European Reference Networks (ERNs) were founded on the principle that many rare disease (RD) issues ...
International audienceThe European Union Committee of Experts on Rare Diseases was entrusted with ai...
(ERN) is the physical or virtual networking of knowledge and expertise of national Centres of Expert...
New challenges and priorities are given in the EU Health programme 2007-2013. The objectives of the ...
While rare diseases (RDs) are by definition of low prevalence, the total number of patients sufferin...
International audienceBACKGROUND:Although rare disease patients make up approximately 6-8% of all pa...
In order to address the main challenges related to the rare diseases (RDs) the European Commission l...