Two years ago, at the ECRD in Krakow, we were celebrat-ing the recommendation of the Council of Ministers on an action in the field of rare diseases: this recommendation requests that Member States define and implement a plan or a strategy for rare diseases by the end of 2013 and asks the European Commission to establish a EU Committee of Experts in the field of Rare Diseases (EUCERD) as a forum of stakeholders to propose action points at EU level. Tw
Having codes for each and every rare disease (RD) would help European and national health authoritie...
International audienceBACKGROUND:Although rare disease patients make up approximately 6-8% of all pa...
Abstract Background Calls have been made for governments to adopt a cohesive approach to rare diseas...
International audienceThe European Union Committee of Experts on Rare Diseases was entrusted with ai...
AbstractRare diseases are those with a particularly low prevalence; in Europe, diseases are consider...
The development of centres of expertise (CE) and European Reference Networks (ERN) in the field of r...
International audienceAround 4% of the global population suffers from a rare disease. Apart from the...
Biobanking is of high importance for research in rare diseases. There are >6,000 rare dise...
Rare diseases imply clinical and economic burden as well as a significant challenge for health syste...
RARE-Bestpractices (http://www.rarebestpractices.eu) is a 4-year project (2013-2016) funded by the E...
Having codes for each and every rare disease (RD) would help European and national health authoritie...
International audienceBACKGROUND:Although rare disease patients make up approximately 6-8% of all pa...
Abstract Background Calls have been made for governments to adopt a cohesive approach to rare diseas...
International audienceThe European Union Committee of Experts on Rare Diseases was entrusted with ai...
AbstractRare diseases are those with a particularly low prevalence; in Europe, diseases are consider...
The development of centres of expertise (CE) and European Reference Networks (ERN) in the field of r...
International audienceAround 4% of the global population suffers from a rare disease. Apart from the...
Biobanking is of high importance for research in rare diseases. There are >6,000 rare dise...
Rare diseases imply clinical and economic burden as well as a significant challenge for health syste...
RARE-Bestpractices (http://www.rarebestpractices.eu) is a 4-year project (2013-2016) funded by the E...
Having codes for each and every rare disease (RD) would help European and national health authoritie...
International audienceBACKGROUND:Although rare disease patients make up approximately 6-8% of all pa...
Abstract Background Calls have been made for governments to adopt a cohesive approach to rare diseas...